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	<title>Comments on: NHS Database: All or Nothing</title>
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	<link>http://www.wonkosworld.co.uk/wordpress/2010/03/11/nhs-database-all-or-nothing/</link>
	<description>I&#039;m not the Messiah, I&#039;m a very naughty boy</description>
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		<title>By: Camille</title>
		<link>http://www.wonkosworld.co.uk/wordpress/2010/03/11/nhs-database-all-or-nothing/comment-page-1/#comment-34208</link>
		<dc:creator>Camille</dc:creator>
		<pubDate>Tue, 13 Apr 2010 14:35:49 +0000</pubDate>
		<guid isPermaLink="false">http://www.wonkosworld.co.uk/wordpress/?p=2253#comment-34208</guid>
		<description>I understand your reluctance to sign up for the Summary Care Record with having so little say on how the data is managed. There is a high level of concern shared between the public about NPfIT’s ability to maintain the privacy of this national database and I don’t think they have been very vocal about what measures they will implement to protect it. 

The NPfIT will have to work to merge all aspects of a medical record into one database so they will have a full electronic profile of you and your medical history. I don’t believe they will be able to exclude certain information but could work towards using a tiered permission based system.

Certain employees of the NHS would be granted high level privileges like doctors, who could access your full medical records if needed but there would be access logs for traceability. In an emergency for example an A&amp;E appointment the necessary data like allergies and blood type would be easily accessible to a wide range of staff. In this way the NHS could implement departmental level access based on the employee’s job title. 

Alternatively, they could potentially setup a system whereby the patient releases rights to their full medical data through a biometric identity check used to unencrypt full or specific aspects of medical records, or through an identification card which they could use to release this data when necessary. Unfortunately biometric identity checks still have some way to go before they can avoid matching false positives or false negatives and identification cards would be an additional cost. 

Please let me know your thoughts on the above.</description>
		<content:encoded><![CDATA[<p>I understand your reluctance to sign up for the Summary Care Record with having so little say on how the data is managed. There is a high level of concern shared between the public about NPfIT’s ability to maintain the privacy of this national database and I don’t think they have been very vocal about what measures they will implement to protect it. </p>
<p>The NPfIT will have to work to merge all aspects of a medical record into one database so they will have a full electronic profile of you and your medical history. I don’t believe they will be able to exclude certain information but could work towards using a tiered permission based system.</p>
<p>Certain employees of the NHS would be granted high level privileges like doctors, who could access your full medical records if needed but there would be access logs for traceability. In an emergency for example an A&amp;E appointment the necessary data like allergies and blood type would be easily accessible to a wide range of staff. In this way the NHS could implement departmental level access based on the employee’s job title. </p>
<p>Alternatively, they could potentially setup a system whereby the patient releases rights to their full medical data through a biometric identity check used to unencrypt full or specific aspects of medical records, or through an identification card which they could use to release this data when necessary. Unfortunately biometric identity checks still have some way to go before they can avoid matching false positives or false negatives and identification cards would be an additional cost. </p>
<p>Please let me know your thoughts on the above.</p>
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		<title>By: John</title>
		<link>http://www.wonkosworld.co.uk/wordpress/2010/03/11/nhs-database-all-or-nothing/comment-page-1/#comment-32335</link>
		<dc:creator>John</dc:creator>
		<pubDate>Sat, 20 Mar 2010 19:51:23 +0000</pubDate>
		<guid isPermaLink="false">http://www.wonkosworld.co.uk/wordpress/?p=2253#comment-32335</guid>
		<description>Not as difficult to find the hand of the EU as I thought. Just a simple google search away and to boot the EU want to link up with a similar scheme brought in by &#039;Barry O&#039;Barmy. now, what would stalin have done with all this lovely info on folks? Don&#039;t sign up is my advice.</description>
		<content:encoded><![CDATA[<p>Not as difficult to find the hand of the EU as I thought. Just a simple google search away and to boot the EU want to link up with a similar scheme brought in by &#8216;Barry O&#8217;Barmy. now, what would stalin have done with all this lovely info on folks? Don&#8217;t sign up is my advice.</p>
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		<title>By: John</title>
		<link>http://www.wonkosworld.co.uk/wordpress/2010/03/11/nhs-database-all-or-nothing/comment-page-1/#comment-32334</link>
		<dc:creator>John</dc:creator>
		<pubDate>Sat, 20 Mar 2010 19:50:51 +0000</pubDate>
		<guid isPermaLink="false">http://www.wonkosworld.co.uk/wordpress/?p=2253#comment-32334</guid>
		<description>Not as difficult to find the hand of the EU as I thought. Just a simmple google search away and to boot the EU want to link up with a similar scheme brought in by &#039;Barry O&#039;Barmy. now, what would stalin have done with all this lovely info on folks? Don&#039;t sign up is my advice.</description>
		<content:encoded><![CDATA[<p>Not as difficult to find the hand of the EU as I thought. Just a simmple google search away and to boot the EU want to link up with a similar scheme brought in by &#8216;Barry O&#8217;Barmy. now, what would stalin have done with all this lovely info on folks? Don&#8217;t sign up is my advice.</p>
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		<title>By: FaustiesBlog</title>
		<link>http://www.wonkosworld.co.uk/wordpress/2010/03/11/nhs-database-all-or-nothing/comment-page-1/#comment-32328</link>
		<dc:creator>FaustiesBlog</dc:creator>
		<pubDate>Sat, 20 Mar 2010 17:24:04 +0000</pubDate>
		<guid isPermaLink="false">http://www.wonkosworld.co.uk/wordpress/?p=2253#comment-32328</guid>
		<description>I have opted out, but took my form to my GP, hoping to get some form of receipt, as proof of my wish not to be on the spine.

Nope, no receipt. 

So it&#039;s my word against theirs, should there ever be a dispute. And how do I know that my data won&#039;t be on there, anwyay?  

I guess I&#039;ll find out next time I fall ill in a county which is not my own and they somehow know all about my medical history.</description>
		<content:encoded><![CDATA[<p>I have opted out, but took my form to my GP, hoping to get some form of receipt, as proof of my wish not to be on the spine.</p>
<p>Nope, no receipt. </p>
<p>So it&#8217;s my word against theirs, should there ever be a dispute. And how do I know that my data won&#8217;t be on there, anwyay?  </p>
<p>I guess I&#8217;ll find out next time I fall ill in a county which is not my own and they somehow know all about my medical history.</p>
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		<title>By: John</title>
		<link>http://www.wonkosworld.co.uk/wordpress/2010/03/11/nhs-database-all-or-nothing/comment-page-1/#comment-31875</link>
		<dc:creator>John</dc:creator>
		<pubDate>Sun, 14 Mar 2010 20:35:46 +0000</pubDate>
		<guid isPermaLink="false">http://www.wonkosworld.co.uk/wordpress/?p=2253#comment-31875</guid>
		<description>I&#039;m not 100% sure about this but I think you can link this NHS data base to an EU wide data base. Someone more skilled in the dark arts of finding links via the internet would no doubt confirm that this is true.

Incidently, if you go onto the EU website for Information commissioners ( yes, this is job is based on an EU directive and EU wide) you find the Princiles that underpin the Directive, these cme straight from Orwell and &#039;Double Speak&#039;. They are not nice cuddly folk protecting your data but are working for the political eleites. 
I&#039;m telling them to shove mine whre the sun don&#039;t shine! Wonko, wear a med tag, you control it!</description>
		<content:encoded><![CDATA[<p>I&#8217;m not 100% sure about this but I think you can link this NHS data base to an EU wide data base. Someone more skilled in the dark arts of finding links via the internet would no doubt confirm that this is true.</p>
<p>Incidently, if you go onto the EU website for Information commissioners ( yes, this is job is based on an EU directive and EU wide) you find the Princiles that underpin the Directive, these cme straight from Orwell and &#8216;Double Speak&#8217;. They are not nice cuddly folk protecting your data but are working for the political eleites.<br />
I&#8217;m telling them to shove mine whre the sun don&#8217;t shine! Wonko, wear a med tag, you control it!</p>
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		<title>By: Home Rule for England</title>
		<link>http://www.wonkosworld.co.uk/wordpress/2010/03/11/nhs-database-all-or-nothing/comment-page-1/#comment-31770</link>
		<dc:creator>Home Rule for England</dc:creator>
		<pubDate>Fri, 12 Mar 2010 20:05:50 +0000</pubDate>
		<guid isPermaLink="false">http://www.wonkosworld.co.uk/wordpress/?p=2253#comment-31770</guid>
		<description>I&#039;m going to opt out. Unless you are taken to hospital seriously ill then you can tell whoever needs to know what your conditions are. 
Anyone who is concerned could carry a note with them with their condition.</description>
		<content:encoded><![CDATA[<p>I&#8217;m going to opt out. Unless you are taken to hospital seriously ill then you can tell whoever needs to know what your conditions are.<br />
Anyone who is concerned could carry a note with them with their condition.</p>
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		<title>By: wonkotsane</title>
		<link>http://www.wonkosworld.co.uk/wordpress/2010/03/11/nhs-database-all-or-nothing/comment-page-1/#comment-31755</link>
		<dc:creator>wonkotsane</dc:creator>
		<pubDate>Fri, 12 Mar 2010 07:19:58 +0000</pubDate>
		<guid isPermaLink="false">http://www.wonkosworld.co.uk/wordpress/?p=2253#comment-31755</guid>
		<description>What security?  The leaflet tells you about all this wonderful security - a chip and pin card, only relevant information will be available, you have to give your permission - but none of the security is in place yet and won&#039;t be for some time.  The telephone helpline don&#039;t tell you that though, they tell you the security measures are in place.  The helpline is just a sales department for the database, they don&#039;t offer any impartial advice.</description>
		<content:encoded><![CDATA[<p>What security?  The leaflet tells you about all this wonderful security &#8211; a chip and pin card, only relevant information will be available, you have to give your permission &#8211; but none of the security is in place yet and won&#8217;t be for some time.  The telephone helpline don&#8217;t tell you that though, they tell you the security measures are in place.  The helpline is just a sales department for the database, they don&#8217;t offer any impartial advice.</p>
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		<title>By: CherryPie</title>
		<link>http://www.wonkosworld.co.uk/wordpress/2010/03/11/nhs-database-all-or-nothing/comment-page-1/#comment-31738</link>
		<dc:creator>CherryPie</dc:creator>
		<pubDate>Thu, 11 Mar 2010 22:16:47 +0000</pubDate>
		<guid isPermaLink="false">http://www.wonkosworld.co.uk/wordpress/?p=2253#comment-31738</guid>
		<description>I got one of those today too!  The idea is great but I don&#039;t trust the security of the government databases!  Not that there is anything very interesting on my records for me to worry about.</description>
		<content:encoded><![CDATA[<p>I got one of those today too!  The idea is great but I don&#8217;t trust the security of the government databases!  Not that there is anything very interesting on my records for me to worry about.</p>
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		<title>By: Kevin Cole</title>
		<link>http://www.wonkosworld.co.uk/wordpress/2010/03/11/nhs-database-all-or-nothing/comment-page-1/#comment-31734</link>
		<dc:creator>Kevin Cole</dc:creator>
		<pubDate>Thu, 11 Mar 2010 21:04:01 +0000</pubDate>
		<guid isPermaLink="false">http://www.wonkosworld.co.uk/wordpress/?p=2253#comment-31734</guid>
		<description>Sounds like a great idea in theory.

My concern is that insurance companies will get hold of it and start invalidating motor and life policies - try sorting out a mortgage or insuring your car then!</description>
		<content:encoded><![CDATA[<p>Sounds like a great idea in theory.</p>
<p>My concern is that insurance companies will get hold of it and start invalidating motor and life policies &#8211; try sorting out a mortgage or insuring your car then!</p>
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